It's been a hectic and tiring few days. Both kids have fevers and are feeling pretty low, or when one is feeling okay the other one is crying from misery. I'm getting sick myself and trying to fight it off. I can't bring the kids to visit daddy, and I have to wear a mask myself. It's yet another level of exhaustion.
So, please pray for a quick recovery for all of us at home, and of course for a full healing and recovery for Daniel if that is what would glorify God the most.
Daniel had another minor bleed on Monday followed by a major bleed the next day, the first from his mouth, the second from his lesion during a dressing change. Bleeding for him is easily potentially life-threatening, and something the doctors have worried about for a long time.
He already needed another transfusion last week and more pamidronate, and now he is getting low on hemoglobin again, and a new IV was started yesterday for more pamidronate again. In these regards, it feels like we're trying to fill up a leaking bucket, and we need God to step in to bring healing and resolution. Please pray for these things.
Also, around Daniel's left eye is puffy, so please pray that will recede. We don't know why but wonder if it might be from the new pillow protector we used last night on his special pillow from home (to make it easier to keep clean). He sleeps on that side.
Well, I need to go. My four year old is screaming and crying.
We continue to agree in prayer with you for healing in Dan, the Lord's comfort and provision for you all, and your family. May the Lord's will be done. The Rachel family.
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